Endometriosis GP Appointment — What to Say
Endometriosis is a condition where tissue similar to the uterine lining grows outside the uterus, causing chronic pain, inflammation, and in many cases significant fertility impact. It takes an average of 7–10 years to diagnose — one of the longest diagnostic delays of any common condition — and much of that delay happens at GP level, where symptoms are routinely normalised as "bad periods." The pain of endometriosis is not normal menstrual discomfort: it is often incapacitating, present outside of the period, and affects sex, bowel movements, and daily functioning. The most dangerous trap is a normal ultrasound being used to dismiss further investigation — ultrasound cannot rule out endometriosis. Knowing how to describe your symptoms using clinical language, and knowing what specifically to ask for, is the most powerful tool you have. This guide helps you advocate clearly for the referral and investigation you deserve.
Reviewed by the Brief My Doctor editorial team · Last updated 2026-06-01
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What to tell your doctor
- 1Pain that is disproportionate to a normal period — describe it specifically: stabbing, burning, deep, radiating, incapacitating
- 2Pain outside of your period: during ovulation, during sex (dyspareunia), during bowel movements or urination (especially around your period)
- 3How much the pain affects your daily life: missed work or school days, cancelled plans, reliance on painkillers
- 4Whether hormonal contraceptives have been used to mask symptoms rather than investigate
- 5Any bowel symptoms: bloating, diarrhoea, or constipation worsening around your period
- 6Fertility concerns if relevant
- 7Family history of endometriosis — it has a strong genetic component
Questions to ask your doctor
- Q1.Given my symptoms, I'd like a referral to a gynaecologist — can we discuss that today?
- Q2.NICE guidelines recommend not dismissing endometriosis based on a normal ultrasound — can we discuss further investigation?
- Q3.I understand a definitive diagnosis requires laparoscopy — when is that step appropriate?
- Q4.What pain management options are available while we investigate?
- Q5.Should I be referred to an endometriosis specialist centre rather than a general gynaecologist?
- Q6.How do I track my symptoms between now and the referral appointment?
Don't forget to bring
- ✓Menstrual diary for the past 3–6 months: pain levels, days missed from normal life, associated symptoms
- ✓List of painkillers used and whether they are effective (endometriosis pain is often NSAID-resistant)
- ✓Any previous investigations: ultrasounds, laparoscopies, hormone blood tests
- ✓Note whether a normal ultrasound has been used to dismiss your symptoms — ultrasound cannot rule out endometriosis
- ✓Family history: mother or sister with endometriosis
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