Preparing for an Adrenal Insufficiency Specialist Appointment
Adrenal insufficiency is rare and often misdiagnosed as depression, chronic fatigue, or anxiety — delaying treatment. If you have been diagnosed, you need an endocrinologist to optimize your steroid replacement regimen and manage acute stressor dosing. If suspected, you need accurate testing to confirm diagnosis before treatment begins. Coming with detailed symptom documentation and test results helps your specialist tailor management.
Reviewed by the Brief My Doctor editorial team · Last updated June 2026
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What to tell your doctor
- 1Symptoms: fatigue, weakness, dizziness, salt cravings, hypoglycaemia, nausea
- 2When symptoms started and whether they are improving or worsening on current treatment
- 3How symptoms fluctuate with activity, stress, or illness
- 4Previous diagnostic testing: ACTH, cortisol, synacthen test results
- 5Any adrenal crisis episodes and what triggered them
- 6Current glucocorticoid and mineralocorticoid replacement doses
- 7Symptoms of under-replacement: ongoing fatigue, dizziness, hypoglycaemia
- 8Symptoms of over-replacement: weight gain, mood changes, insomnia
- 9Underlying cause if known: autoimmune, pituitary, medication-related
- 10Impact on work and daily function
Questions to ask your doctor
- Q1.Is my current steroid dose correct for my activity level?
- Q2.How do I adjust dosing during stress, illness, or surgery?
- Q3.What are signs of adrenal crisis and when to seek emergency care?
- Q4.Should I wear a medical alert bracelet?
- Q5.Do I need to see other specialists?
- Q6.Are there dietary recommendations?
- Q7.How often do I need to be monitored?
- Q8.Should my family be educated about crisis management?
Don't forget to bring
- ✓Previous ACTH, cortisol, and other adrenal test results
- ✓Current medication doses and timing
- ✓Documentation of symptoms and response to current treatment
- ✓Previous crisis episodes and outcomes
- ✓Information about underlying cause if diagnosed
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