Preparing for a Coeliac Disease Follow-up Appointment
After coeliac diagnosis, follow-up care focuses on adherence to a gluten-free diet, nutritional status, complications monitoring, and management of associated conditions. Your specialist needs to assess your diet adherence, symptoms, and laboratory markers to ensure good disease control and prevent long-term complications.
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What to tell your doctor
- 1Whether you have adopted a fully gluten-free diet and how strictly you follow it
- 2Ongoing symptoms on a gluten-free diet: GI symptoms, fatigue, other
- 3Accidental gluten exposures and their frequency
- 4Nutritional symptoms: anaemia, bone symptoms, vitamin deficiencies
- 5Weight and nutritional status: gains or losses
- 6Adherence challenges and accidental exposures
- 7Associated conditions screening: thyroid disease, osteoporosis, dermatitis herpetiformis
- 8Quality of life and psychological adjustment
- 9Family screening status if applicable
- 10Previous endoscopy results if available
Questions to ask your doctor
- Q1.Is my intestinal lining healing on a gluten-free diet?
- Q2.Should I have repeat endoscopy?
- Q3.Do I need nutritional supplementation?
- Q4.What are my risks of complications?
- Q5.Should I be screened for other conditions?
- Q6.Are there support resources available?
- Q7.What is my long-term outlook?
- Q8.Should I see a dietitian regularly?
Don't forget to bring
- ✓List of foods you regularly eat to assess gluten contamination
- ✓Nutritional supplement list if taking
- ✓Documentation of any ongoing symptoms
- ✓Previous endoscopy or serology results
- ✓Information about adherence challenges
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